Stories

1. How did your patient journey begin? I was born with kidney disease but was misdiagnosed with ‘thin basement membrane disease’ at the age of three. For most of my life I thought that was the root cause of my weakening kidneys and only recently found...

1. How did your patient journey begin? I was on a typical Saturday run with my friend when my shoulders began hurting only a mile in. I asked to walk but the feeling grew so uncomfortable I had to sit down. My friend wanted to call...

1. How did your patient journey begin? My journey began when I was five years old and had my first grand mal seizure. Then at ten years old I was diagnosed with polycystic kidney disease (PKD). And in eighth grade I had two Harrington rods placed...